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Familial & Hereditary Disorders >> Neurofibromatosis
Neurofibromatosis type 2 (NF 2) is a genetic disorder consisting of noncancerous tumors in the nervous system. The most common tumors here develop along the nerve that carries information from the inner ear to the brain. NF 2 also causes skin changes and bone deformities.
General Study Procedures:
The research studies listed below are currently open for enrollment to adults and children. Minors need approval from a parent. These studies may involve neurologic examinations; imaging studies; and gene and biomarker evaluations. Please see the links below for the procedures and eligibility criteria for specific studies. There is no cost for participation or for any tests associated with the research.
Studies Actively Recruiting Patients:
Natural History Study of Patients With Neurofibromatosis Type 2
For more information about participating in these studies, please contact :
For protocol 08-N-0044
Hetty DeVroom, R.N.
Surgical Neurology, NINDS
Bldg. 10, Room 3D20
10 Center Drive, MSC 1414
Bethesda, MD 20892-1414
Tel: 301 594 8111
Patient Recruitment and Public Liaison Office toll-free at:
For more information on
NINDS AT THE CLINICAL CENTER