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Neurosurgical Disorders & Brain Tumors >> Syringomyelia

Disease Description:
Syringomyelia is a chronic disease of the spinal cord where there is a cavity filled with fluid. This cavity enlarges over time and causes more damage to the nerve centers of the spinal cord because of the pressure from the fluid. This damage results in pain, weakness, muscle stiffness, and numbness in the back, shoulders, arms, or legs. People with syringomyelia experience different combinations of symptoms.

General Study Procedures:
The research studies listed below are currently open for enrollment for adult subjects. They explore and establish the physiology of syringomyelia. These will involve imaging studies of the spine, cervical and lumbar punctures, and surgery, if indicated. Please see the links for the procedures and eligibility criteria for specific studies. There is no cost for participation or for any tests associated with the research.

Studies Actively Recruiting Patients:
10-N-0143: A Prospective Natural History Study of Patients with Syringomyelia

For more information about participating in these studies, please contact :
For protocol 10-N-0143
Gretchen C. Scott, BSN, RN, CCRN

Tel: 301 496 2921
Email: SNBrecruiting@nih.gov

or
Patient Recruitment and Public Liaison Office toll-free at:
1-800-411-1222
TTY: 1-866-411-1010

For more information on Syringomyelia:


NINDS HOME ACCESSIBILITY INFORMATION NINDS AT THE CLINICAL CENTER PRIVACY STATEMENT RECRUITMENT CONTACT
U.S. Department of Health & Human Services National Institutes of Health National Institute of Neurological Disorders and Stroke The U.S. Government's Official Web Portal